Encuesta de Discapacidad, Autonomía personal y situaciones de Dependencia (EDAD2008)  Spain
Questionnaire Overview sections first level Overview sections second level Linking to the ICF Items on disability? Capacity & Performance specified? Time frame (only disability questions) Response options (only disability questions) Any known instrument included? Filter (for the whole section) Checked (x) Relevant Comment
(e. g. household, individual, etc)     only chapter level None Capacity   Frequency SF-36     0=no  
        1 to 5 Performance   Intensity WHODAS     1=yes  
        5 to 10 Both   Statement WG-6        
        10 to 20 Not clearly stated   Others Others (please specify)        
        More than 20     Yes/No None        
Household questionnaire (HH) A. Identification 1. Section identification data               x 0  
Household questionnaire (HH) A. Identification 2. Identification of the dwelling and household               x 0  
Household questionnaire (HH) A. Identification 3. Informant details               x 0  
Household questionnaire (HH) A. Identification 4. Other data               x 0  
Household questionnaire (HH) A. Identification 5. Time of start of interview               x 0  
Household questionnaire (HH) B. Composition of the household 1. Identification of the household members present or absent               x 0  
Household questionnaire (HH) C. Details of members of the household   pf, d8 na na na na na na x 1 Demographic characteristics of the population
Household questionnaire (HH) D. Disabilities currently suffered by household members 6 years old or more Block A: Sight b2 1 to 5 performance more than one year Yes/No None na x 1 In order to respond to all blocks, respondents should keep in mind persons when they are not using aids or supervision. If someone overcomes their limitation through use of an aid or receiving supervision, they must still be considered to be facing the corresponding difficulty. For example, if someone can only eat when assisted by another person, then he or she does have a limitation. However, an exception is made in the case of visual impairment (miopia, astigmatism, ...): If the person has these difficulties and overcomes them with spectacles or contact lenses, he or she is regarded as not having the limitation. By assistance two types are meant: technical aids and personal aids.
Questions are filters to decide which persons are going to be included in the survey.
Household questionnaire (HH)   Block B: Hearing b2 1 to 5 capacity more than one year Yes/No None na x 1
Household questionnaire (HH)   Block C: Communication d3 5 to 10 capacity more than one year Yes/No None na x 1
Household questionnaire (HH)   Block D: Learning and application of knowledge and development of tasks. d1, d2 1 to 5 capacity more than one year Yes/No None na x 1
Household questionnaire (HH)   Block E: Mobility d4 5 to 10 capacity more than one year Yes/No None na x 1
Household questionnaire (HH)   Block F: Self care d5 5 to 10 capacity more than one year Yes/No None na x 1
Household questionnaire (HH)   Block G: Home life d6 1 to 5 capacity more than one year Yes/No None na x 1
Household questionnaire (HH)   Block H: Interactions and interpersonal relations d7 5 to 10 capacity more than one year Yes/No None na x 1
Household questionnaire (HH) E. Serious or significant limitations or difficulties currently faced by household members under 6 years old (0-5)                 x 0 Only children
Household questionnaire (HH) F. Income of the household members   e1 na na na na None na x 1 Income situation
Household questionnaire (HH) G. Net extraordinary social benefits received by household members and assistance from the social protection system   e5 na na na na None na x 1 Focus on social benefits
Household questionnaire (HH) H. Expenditure due to disabilities   e1 na na na na None na x 1 Focus on expenditures due to disabilities
Household questionnaire (HH) I. Dwelling conditions and accessibility   e1, e2 na na na na None na x 1 Focus on dwelling conditions
Household questionnaire (HH) J. Degree of relatedness of household members                 x 0  
Household questionnaire (HH) K. Time the interview ended and date of completion of this questionnaire.                 x 0  
Disability questionnaire (DQ) A. Identification 1. Section identification data               x 0  
Disability questionnaire (DQ) A. Identification 2. Identification of the dwelling, household and person with disabilities               x 0  
Disability questionnaire (DQ) A. Identification 3. Identification of the informant               x 0  
Disability questionnaire (DQ) A. Identification 4. Reason for the proxy information               x 0  
Disability questionnaire (DQ) B. Information relating to disabilities, original impairments and illnesses diagnosed by a doctor.                     Heading of the B section
Disability questionnaire (DQ) B1. Disability chart for the affected person, original impairments and age of onset of the disability Block A: Sight b2 More than 20 performance more than one year Intensity None Only persons for which a disability in the HH questionnaire was identified x 1 Interviewer should refer in the Household Questionnaire to disabilities for this person and mark in the left-hand column of the given table, the disabilities noted in the Household Questionnaire. The interviewer should only ask questions corresponding to disabilities already identified in the HH questionnaire. For each block of the Section B1 there are as many boxes to be ticket as questions in this block of the household questionnaire.

To answer the column "how many questions on disability" all section questions were considered, the one's directly addressing disability and the related ones.
Disability questionnaire (DQ)   Block B: Hearing b2 More than 20 Both more than one year Intensity None Only persons for which a disability in the HH questionnaire was identified x 1
Disability questionnaire (DQ)   Block C: Communication d3 More than 20 Both more than one year Intensity None Only persons for which a disability in the HH questionnaire was identified x 1
Disability questionnaire (DQ)   Block D: Learning and application of knowledge and development of tasks. d1, d2 More than 20 Both more than one year Intensity None Only persons for which a disability in the HH questionnaire was identified x 1
Disability questionnaire (DQ)   Block E: Mobility d4 More than 20 Both more than one year Intensity None Only persons for which a disability in the HH questionnaire was identified x 1
Disability questionnaire (DQ)   Block F: Self care d5 More than 20 Both more than one year Intensity None Only persons for which a disability in the HH questionnaire was identified x 1
Disability questionnaire (DQ)   Block G: Home life d6 10 to 20 Both more than one year Intensity None Only persons for which a disability in the HH questionnaire was identified x 1
Disability questionnaire (DQ)   Block H: Interactions and interpersonal relations d7 More than 20 Both more than one year Intensity None Only persons for which a disability in the HH questionnaire was identified x 1
Disability questionnaire (DQ) B2. Table of original impairments of disabilities: cause and age of onset of impairments.   hc na na na na None none x 1 List of potential causes of disability like congenital problems, traffic accident or work-related accident as well as list of potential illnesses like spinal cord injury, MS or Down's syndrome is gone through. Additionally, being bed ridden, the own appraisal whether technical assistance currently received or used meet the needs and number of siblings is asked.
Disability questionnaire (DQ) C. Information relating to membership of Non-Government Organisations as a consequence of a disability   d9, e5 na na na na None none x 1 Due a disability, do you or your relatives belong to a non-government organisation or association (NGO) dedicated to persons with disabilities? Please indicate the original impairment leading to your membership of one or more of these organisations. Interviewer: Enter literal and code. What NGO do you belong to on the grounds of your disability?
Disability questionnaire (DQ) D. Information relating to health, social and economic benefits   e1, e5 na na na na None none x 1  
Disability questionnaire (DQ) E. Information relating to changes in economic activity and data on current economic activity.   d8, e5 na Performance na na None none x 1 Although the survey is based on the ICF, the whole chapter D8 were not considered in the disabilities section. In this section information about work is gathered. However, the questions address rather demographic issues than capacity or performance.
Disability questionnaire (DQ) F. Information relating to the level of studies completed and in progress   d8 na na na na None none x 1 Although the survey is based on the ICF, the whole chapter D8 were not considered in the disabilities section. In this section information about school life is gathered. However, the questions address rather demographic issues than capacity or performance.
Disability questionnaire (DQ) G. Information relating to education and schooling   d8, e5 na Performance na na None none x 1 Although the survey is based on the ICF, the whole chapter D8 were not considered in the disabilities section. In this section information about school life is gathered. However, the questions address rather demographic issues than capacity or performance.
Disability questionnaire (DQ) H. Information relating to discrimination   e4 na na na na None none x 1 Discrimination among others in health care, school or work is targeted.
Disability questionnaire (DQ) I. Information relating to social networks and contacts   d7, d9 na na na na None none x 1 Social support is targeted, concrete information asked.
Disability questionnaire (DQ) J. Information Relative service accessibility   d4, e1 na na nd Yes/No None none x 1 Transportation problems are targeted.
Disability questionnaire (DQ) K. Information relating to health   hc, d5, d9 na na nd Yes/No None none x 1  
Disability questionnaire (DQ) L. Information relating to personal care received by persons with disabilities   e3 na na na na None none x 1 Nursing person and nursing time information. Also information on own appraisal like "Do you consider the help received from other person to satisfy your needs?" are stated.
Limitations questionnaire (LQ) A. Identification                 x 0 Questionnaire for children under 6 years of age (from 0 to 5 years)
Limitations questionnaire (LQ) B. Information relating to limitations, original impairments, aid received and not received and illnesses diagnosed                 x 0  
Limitations questionnaire (LQ) C. Information relating to changes in residence and membership of NGOs, as a result of a limitation                 x 0  
Limitations questionnaire (LQ) D. Information relating to health, social and economic benefits                 x 0  
Limitations questionnaire (LQ) E. Information relating to personal care received by children with a limitation                 x 0  
Limitations questionnaire (LQ) F. Time the interview ended and date of completion of this questionnaire                 x 0  
Hospitals Questionnaire (HQ) A. Identification                 x 0 Questionnaire addressing the characteristics of hospitals
Hospitals Questionnaire (HQ) B. General data                 x 0  
Hospitals Questionnaire (HQ) C. Characteristics of persons residents in the hospital                 x 0  
Hospitals Questionnaire (HQ) D. Human Resources                 x 0  
Hospitals Questionnaire (HQ) E. Expenditure                 x 0  
Main Carer Questionnaire (CQ) A.Identification                 x 0 Questionnaire addressing the characteristics of main carers
Main Carer Questionnaire (CQ) B. Information relating to the main carers.                 x 0  
Main Carer Questionnaire (CQ) C. Time the interview ended and date of completion of this questionnaire                 x 0  
Cuestionario de Personas (PQ) A. Identification                 x 0 The questionnaires for persons was developed to interview persons living in a institution. The questions regarding disability are the same used in the disabilities questionnaire and were therefore not extracted.
Cuestionario de Personas (PQ) B. Datos Personales                 x 0  
Cuestionario de Personas (PQ) C. Información relativa a las discapacidades, deficiencias de origen y enfermedades diagnosticadas BLOQUE A: VISIÓN               x 1  The questions included in these modules are the same used in the disabilities questionnaire and were therefore not extracted.
Cuestionario de Personas (PQ)   BLOQUE B: AUDICIÓN               x 1
Cuestionario de Personas (PQ)   BLOQUE C: COMUNICACIÓN               x 1
Cuestionario de Personas (PQ)   BLOQUE D: APRENDIZAJE Y APLICACIÓN DEL CONOCIMIENTO Y DESARROLLO DE TAREAS               x 1
Cuestionario de Personas (PQ)   BLOQUE E: MOVILIDAD               x 1
Cuestionario de Personas (PQ)   BLOQUE F: AUTOCUIDADO               x 1
Cuestionario de Personas (PQ)   BLOQUE G: VIDA DOMÉSTICA               x 1
Cuestionario de Personas (PQ)   BLOQUE H: INTERACCIONES Y RELACIONES INTERPERSONALES               x 1
Cuestionario de Personas (PQ) D. Información relativa a la discriminación                 x 1
Cuestionario de Personas (PQ) E. Información relativa a redes y contactos sociales                 x 1 Questions included in this module are adapted to the reality of person living in a instituition but in content and structure very similar to the DQ and for this reason not extracted
Cuestionario de Personas (PQ) F. Autonomía Personal   d9 5 to 10 Performance nd Yes/No None None x 1 Questions included in this module are adapted to the reality of person living in a instituition
Cuestionario de Personas (PQ) G. Accesibilidad   d4, e1 1 to 5 Performance nd Yes/No None none x 1 Questions included in this module are adapted to the reality of person living in a instituition
Cuestionario de Personas (PQ) H. Información relativa a los cuidados personales   e3 na na na na None none x 1 Questions included in this module are adapted to the reality of person living in a instituition
General impressions
Although the definition of disability implies an impairment as cause and a high level of activities limitations and participation restrictions to be considered so, the survey is broad and very detailled structured. Also persons living in instituitions were included.
In this file only the disability questionnaire and the last modules of the questionnaire for institutionalized persons were extracted and mapped to the ICF.
The household questionnaire was extracted/mapped in a separate file. All further questionnaires were neither extracted nor mapped.

Health condition not addressed in the household questionnaire.
Household questionnaire broadly addressing disability and demographics. Oficial description:
"First phase: Household Questionnaire: In the first phase, we have tried to include all of the persons of the household interviewed who had some disability. To this end, we have gone to the reference person of the household, her/his spouse or partner, or another person who was in the household at the time, and who was sufficiently informed, to ask a series of questions aimed at determining the disabilities of each person resident in the household, where the disability was shown in terms that were comprehensible for persons of any cultural level. In this first phase, information was also requested regarding the type of household and composition thereof, regarding the regularly monthly household income level and extraordinary social benefits. Likewise, information was requested of all of the residents of the household regarding age, sex, kinship relationships - with the reference person of the household and with the persons who had some disability - , country of birth, nationality, marital status and cohabitation situation, level of studies completed, certificate of handicap (>=33%), relationship with economic activity, professional situation, occupation, activity of the company and province of residence. It ended with a section regarding the conditions and accessibility of the dwelling, and other regarding private household expenditure due to the disability”

Health condition is addressed in a very detailled manner in module K of the disability questionnaire.
Oficial description: "Second phase, A. Disability Questionnaire (Persons 6 years old or over), This second phase aimed at interviewing persons 6 years old and over where were the target of study, that is, who presented some disability. Therefore, a questionnaire of Disabilities was given to each one of the persons 6 years old or over who had stated, in the household questionnaire, that they had some disability. This questionnaire was to be answered, whenever possible, by the target person of the interview. In this case, the completion of the questionnaire was begun, verifying the disabilities that the informant of the household questionnaire had marked. Next, they were asked about the characteristics of the disabilities: degree of severity of each disability, age at the beginning of the disability, impairment that caused each one of them, and whether they received supervision or personal assistance, or used some external technical aid. For each disability, only one impairment was considered. Therefore, when the same disability could be caused by more than one impairment, or when it was difficult to ascertain the true origin of the disability, at the time of collecting this information, certain guidelines, which will be explained later, were followed. Once the disabilities caused by the same impairment were determined for each person, and starting from this point, they were asked about the problem that caused said impairment, and the age at which it began. Likewise, information was requested regarding a set of diagnosed illnesses; whether the disabilities forced the person to observe bed rest; regarding the degree of satisfaction with the technical and/or personal aid received; personal care; changes of residence due to disabilities; belonging to non-governmental organisations; health and social benefits, if they had received or were receiving some type of economic benefit. In order to analyse the degree of social integration of the group of persons with disabilities, a section was introduced regarding changes in economic activity as a result of the disability, and data regarding the current economic activity. Likewise, it was studied whether the persons who were not incorporated into the labour force had had to leave certain tasks-jobs that were important or necessary for their household economy, as a result of the disability. More specific information was also required regarding the level of studies completed, studies currently undertaken and school integration. It also included sections regarding discrimination, social networks and contacts, accessibility and overall health.”
Broad survey with differentiation between capacity & performance and focusing the extent of problems. Definition of disability not in accordance with the ICF.